The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016.

 

The Foundation is a registered 501(c)(3). EIN: 83-2757964

​

​

Mission

​

To enhance the lives of people with HADDS through research, education, support and advocacy.

​

​

Mantra

​

Impacting the world together, one story at a time.

​
 

Vision

​

Raise educational awareness and funding for research so that every person with HADDS:

 

• Has a supportive community

​

• Is able to reach their full potential 

​

• Has access to the most current educational/therapy materials

​

• Has access to the most current research​​

 

Values

​

Ethical & Transparent: It is the Foundation’s priority to be ethically and financially responsible when advancing our mission in the areas of research, education, support and advocacy.

 

Committed: We are nothing as an organization if we are not committing our energy, talents and resources consistently towards research and education. Commitment drives progress!

 

Inclusive & Collaborative: Be ambassadors for inclusion, welcoming and facilitating an environment of hope, belonging and community for all impacted by HADDS globally.

​