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Our Guiding Principles

Mission

To enhance the lives of people with HADDS through research, education, support and advocacy.

Mantra

Impacting the world together, one story at a time.


 

Vision

Raise educational awareness and funding for research so that every person with HADDS:

 

  • Has a supportive community

  • Is able to reach their full potential 

  • Has access to the most current educational/therapy materials

  • Has access to the most current research


 

Values

Ethical & Transparent: It is the Foundation’s priority to be ethically and financially responsible when advancing our mission in the areas of research, education, support and advocacy.

 

Committed: We are nothing as an organization if we are not committing our energy, talents and resources consistently towards research and education. Commitment drives progress!

 

Inclusive & Collaborative: Be ambassadors for inclusion, welcoming and facilitating an environment of hope, belonging and community for all impacted by HADDS globally.


 

Official HADDS Foundation SQUARE .jpg

The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families living with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016.

 

The Foundation is a registered 501(c)(3).

EIN: 83-2757964

CONTACT >

E: info@hadds.org

 

Mailing Address:

PO Box 220052

343 S Kirkwood Rd Ste 105

St. Louis, MO 63122

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© 2021 by EBF3 HADDS FOUNDATION 

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