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2021 HADDS Awareness Month LARGE Banner.

What is HADDS Awareness Month?

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HADDS Awareness Month was created by the Foundation in 2019 to rally our community around a central focus -- raising HADDS Awareness and celebrating each other!

 

Being part of a rare community is an opportunity to be ambassadors and teachers within local communities, educating others about HADDS.

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How can you get involved?

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There are many ways to get involved, and the calendar of events highlights the major activities happening throughout the month. Additional details about each event will be shared through our social media channels. Some people join every event, while others choose what works best for their schedule. You’re also encouraged to take the initiative and raise awareness for HADDS and 10q26 deletion in your own unique way—whether it’s organizing a fundraiser, sharing information on social media, or starting a community conversation. Every effort makes a difference!

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If you have questions, reach out to info@hadds.org

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Awareness Week

Awareness Week is a concentrated effort that encourages families to wear awareness ribbons, dress in HADDS Plaid and use their social media voices to raise awareness & fundraise!

 

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#HADDSLOVE Week

#HADDSLOVE week is the third week of February, and was created to encourage families to  practice gratitude and express love to people that support and positively impact individuals living with HADDS throughout the year.

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Click for the PDF

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HADDS Valentine

Each year we send a new and unique Valentine's Day card to ensure every individual with HADDS feels loved and included. Complete the form by

January 24, 2025.

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HADDS Goes to School

Peer awareness and inclusion are very important for growth, which is why we encourage all of our school age families to host an event. 

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The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families living with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016.

 

The Foundation is a registered 501(c)(3).

EIN: 83-2757964

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CONTACT >

E: info@hadds.org

 

Mailing Address:

326 Wildrose Ave

San Antonio, TX 78209

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© 2021 by EBF3 HADDS FOUNDATION 

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